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organisation Bupa and global
dementia federation Alzheimer's
Disease International have
launched a joint global dementia
charter to outline the universal
rights of people with dementia.
The 10-point, 'I can live well
with dementia' charter, has been
written from the perspective of
someone living with dementia and
sets out the global standard for
quality dementia care and support.
From the right to a diagnosis
and accurate information about
the disease, to the right to have
a say in the care provided and
to have their end of life care
wishes respected, the charter
encompasses many stages of a
Margaret Ryan, Head
of Dementia for Bupa Care
Services Australia, said the
charter would provide for the first
time an international framework
against which all governments
and societies could measure
their progress towards achieving
"It is a manifesto that we can
use to outline what dementia
care should look like across the
globe and what every person
diagnosed with dementia should
expect from his or her care and
treatment," she said.
Ms Ryan said the document
was akin to the Department
of Health and Ageing's own
charter of residents' rights and
responsibilities, but it was specific
to the needs of people with
dementia both in care and in the
community, and set out a globally
agreed upon benchmark.
"These principles form the
cornerstone of best practice care
and for achieving an optimal quality
of life, with the emphasis being on
living with dementia," she said.
As the largest international
provider of specialist dementia
care, Ms Ryan said Bupa is
committed to working with
Alzheimer's Australia and
ADI to raise the profile and
understanding of this condition.
Glenn Rees, CEO of
Alzheimer's Australia, said for
Australia to meet these standards
there needs to be a greater
investment in the training of
"It is critical doctors, GPs and
nurses receive the skills required
to diagnose the condition
and care for people from the
moment of diagnosis to end of
life," Mr Rees said.
"Unfortunately, the fact is that
time and again we hear horror
stories about the inappropriate
care received by people living
with the condition especially in
residential care," he said.
The number of people in
Australia living with dementia is
set to increase by one third, from
321,600 to 400,000, in less than
Bupa and ADI are also
calling on all governments
around the world to develop
national dementia plans to make
dementia a national public health
priority, as is the case in Australia.
At the moment, only nine
countries -- Australia, UK, US,
Denmark, Finland, France,
South Korea, Norway and the
Netherlands -- have a national
The global charter was
simultaneously launched in the
UK, where Marc Wortmann,
Executive Director of ADI,
representing 75 Alzheimer
associations around the world,
said national dementia plans
are the single most impactful
mechanism to shape national
dementia care for a generation.
The joint campaign has also
launched a YouTube video, which
features individuals from all over the
globe outlining the 10-point charter.
The document is supported
by a list of actions and
accountabilities that outlines what
families, friends, carers, healthcare
professionals, and governments
can do to improve dementia care
and support in their country.
THE 10 POINTS
OF THE GLOBAL
1. I should have access to a
doctor to check if I have
2. I should have access to
information about dementia
so I know how it will affect me.
3. I should be helped to live
independently for as long
as I can.
4. I should have a say in the
care and support that I
5. I should have access to high-
quality care that's right for me.
6. I should be treated as an
individual, with those looking
after me knowing about my life.
7. I should be respected for who
8. I should have access to
medicine and treatment that
9. My end of life wishes should
be discussed with me while I
can still make decisions.
10. I want my family and friends
to have fond memories of me.
To read the charter in full, visit:
10 rights for people
By Linda Belardi
www.australianageingagenda.com.au | 11
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